“Stick with it, you will have good days and bad days and when you have a good day it’s fantastic.”<\/em><\/p>\n One minute he loves them the next he won’t go near them and can be violent towards them.<\/p>\n Walking as we can not do much.<\/p>\n How we should be and act with our child without him getting too excitable.<\/p>\n How loving he can be.<\/p>\n To try and help us and other people who may have the same problem.<\/p>\n My son has 16p12.2 deletion syndrome and I would love to help as I feel it could help other people and myself.<\/p>\n Not much as we don’t know anyone who has this problem.<\/p>\n Stick with it, you will have good days and bad days and when you have a good day it’s fantastic.<\/p>\n How to help him in life and what may happen later in life.<\/p>\n Keep smiling and try your best you are all doing great even though it’s all a struggle.<\/p>\n","protected":false},"excerpt":{"rendered":" By: Parent of a child with a 16p12.2 deletion “Stick with it, you will have good days and bad days and when you have a good day it’s fantastic.” What is your child\u2019s relationship like with his\/her siblings? One minute he loves them the next he won’t go near them and can be violent towards […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":8972,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/9409"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=9409"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/9409\/revisions"}],"predecessor-version":[{"id":9410,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/9409\/revisions\/9410"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/8972"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=9409"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n