“Never give up. Keep pushing doctors to do everything they can to help control. Join support groups.”<\/em><\/p>\n Leah loves her older sister but is easily angered and can become aggressive.<\/p>\n Taking walks on the local trails and road tripping.<\/p>\n Definitely trying to control Leah’s epilepsy due to CHD2 and her developmental delay.<\/p>\n When she’s having a good day and her laughter.<\/p>\n Quality of life and I’d love to know more about CHD2 in regard to improving effective means of control.<\/p>\n Leah exhibits almost all of the findings in the research except the height and smaller head.<\/p>\n That they all share similarities<\/p>\n Never give up. Keep pushing doctors to do everything they can to help control. Join support groups.<\/p>\n Is there a way to stop the seizures completely?<\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" By: Melissa, Parent of Leah, a 14 year old with a CHD2 genetic change “Never give up. Keep pushing doctors to do everything they can to help control. Join support groups.” What is your child\u2019s relationship like with his\/her siblings? Leah loves her older sister but is easily angered and can become aggressive. What does […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":423,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/8826"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=8826"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/8826\/revisions"}],"predecessor-version":[{"id":8828,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/8826\/revisions\/8828"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/423"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=8826"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n