“You’re family member is still the same person they were yesterday. Nothing changes.”<\/em><\/p>\n She’s a lot younger than her siblings, but they seem to have a loving relationship. Unfortunately her siblings are old enough that they worry about her when things go wrong.<\/p>\n We like to be silly, joke around, attend holiday and school functions, and play outside.<\/p>\n We struggle financially and struggle to have positive relationships with the kids’ fathers.<\/p>\n She’s very kind hearted.<\/p>\n We would like to make it easier for families diagnosed in the future to get information and know what to expect.<\/p>\n My daughter has even more complications than are considered typical, so hopefully we’re contributing to further understanding of possible complications.<\/p>\n That there is a wide variation in presentation of the deletion.<\/p>\n You’re family member is still the same person they were yesterday. Nothing changes.<\/p>\n","protected":false},"excerpt":{"rendered":" By: Parent of Iris, a 5 year old with a 1q21.1 Deletion “You’re family member is still the same person they were yesterday. Nothing changes.” What is your child\u2019s relationship like with his\/her siblings? She’s a lot younger than her siblings, but they seem to have a loving relationship. Unfortunately her siblings are old enough […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":163,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/7144"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=7144"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/7144\/revisions"}],"predecessor-version":[{"id":7147,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/7144\/revisions\/7147"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/163"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=7144"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n