“One day at time and progress not perfection”<\/em><\/p>\n Jacob is an only child. He loves to be involved in home and community events, but is on a restrictive schedule every day to reduce behaviors.<\/p>\n Church, clean, join ONF in area for social peer fun, arts and crafts, and community fun tasks.<\/p>\n Single parent household whom works a lot, but while managing child who has maladaptive behaviors, health concerns, and school issues. But, parent is an advocate to help him get his services and needs met.<\/p>\n His smile and joy for world.<\/p>\n To help others learn more about this disorder in the general public and professionals.<\/p>\n Similar GI, academic issues, behavioral issues, but how unique every kid is.<\/p>\n One day at time and progress not perfection.<\/p>\n Speech issues health issues on how professional-aka school can manage correctly.<\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" By: Rachelle, Parent of Jacob, a 7 year old with a 7q11.23 Duplication “One day at time and progress not perfection” What is your child\u2019s relationship like with his\/her siblings? Jacob is an only child. He loves to be involved in home and community events, but is on a restrictive schedule every day to reduce […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":5652,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/6490"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=6490"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/6490\/revisions"}],"predecessor-version":[{"id":6492,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/6490\/revisions\/6492"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5652"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=6490"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n