“We\u00a0aren’t alone in this journey.”<\/em><\/p>\n Most of the time it’s a typical relationship. They still argue and fight even though they are 6 years apart.<\/p>\n Camping, swimming, board games.<\/p>\n It’s really difficult that he looks normal. Often strangers just think he’s being rude, when he doesn’t respond.<\/p>\n He can be very helpful.<\/p>\n Hope.<\/p>\n I think we are helping to fill in some of the gaps.<\/p>\n I’ve learned new medications to try and that we aren’t alone in this journey.<\/p>\n To take it one step at a time. Someone once told me, keep your expectations low. At the time, I thought how awful. I get it now and can fully enjoy the small accomplishments!<\/p>\n How to make things better.<\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" By: Lisa, Parent of Braden, an 18 year old with a 16p11.2 Deletion “We\u00a0aren’t alone in this journey.” What is your child\u2019s relationship like with his\/her siblings? Most of the time it’s a typical relationship. They still argue and fight even though they are 6 years apart. What does your family do for fun? Camping, […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/6173"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=6173"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/6173\/revisions"}],"predecessor-version":[{"id":6175,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/6173\/revisions\/6175"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=6173"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n