{"id":59054,"date":"2025-01-28T09:47:24","date_gmt":"2025-01-28T14:47:24","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?p=59054"},"modified":"2025-01-28T09:47:42","modified_gmt":"2025-01-28T14:47:42","slug":"parents-simons-searchlight-progress","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/2025\/01\/28\/parents-simons-searchlight-progress\/","title":{"rendered":"Parents + Simons Searchlight = Progress"},"content":{"rendered":"<p>Parenting a child with a rare genetic neurodevelopmental condition can often feel overwhelming. From managing medical appointments to navigating educational needs, it\u2019s easy to feel like you\u2019re facing these challenges alone. But you\u2019re not alone\u2014and there are resources that can make a difference.<\/p>\n<p>At <span class=\"notranslate\">Simons Searchlight<\/span>, we partner with families like yours to accelerate research and drive progress for rare genetic conditions. By sharing your experiences and participating in long-term research, you can help uncover valuable insights that bring us closer to improved care, treatments, and hope for the future.<\/p>\n<p><strong>Hear directly from families who have joined <span class=\"notranslate\">Simons Searchlight<\/span> and see how their participation is making a meaningful impact<\/strong>. Watch our new video and learn how you can be part of this growing community of families working together to advance research.<\/p>\n<iframe loading=\"lazy\" title=\"Parents + Simons Searchlight = Progress\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/y3etOsPCoqs?start=12&#038;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>See how joining Simons Searchlight has made it easier to accelerate progress. <\/p>\n","protected":false},"author":18,"featured_media":59065,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[19],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/59054"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=59054"}],"version-history":[{"count":3,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/59054\/revisions"}],"predecessor-version":[{"id":59073,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/59054\/revisions\/59073"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media\/59065"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=59054"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/categories?post=59054"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/tags?post=59054"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}