{"id":58200,"date":"2025-01-10T15:10:40","date_gmt":"2025-01-10T20:10:40","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?p=58200"},"modified":"2025-01-10T15:10:40","modified_gmt":"2025-01-10T20:10:40","slug":"marvins-story-living-with-kmt2e","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/2025\/01\/10\/marvins-story-living-with-kmt2e\/","title":{"rendered":"The Fields’ Journey with KMT2E"},"content":{"rendered":"

What is your family like?<\/h3>\n

My son is the oldest of our two adopted children.<\/p>\n

What do you do for fun?<\/strong><\/h3>\n

We love to go to King’s Dominion, the science museum, read, and watch movies.<\/p>\n

Tell us about the biggest hardship you face.<\/b><\/h3>\n

My youngest daughter is in hospice at this time.<\/p>\n

\"\"<\/b><\/h3>\n

What about your child puts a smile on your face?<\/h3>\n

His sense of humor.<\/p>\n

What motivates you to participate in research? How has participating in research been helpful for you?<\/b><\/h3>\n

I’m hopeful we can help other families.<\/p>\n

How do you feel you are helping Simons Searchlight<\/span> learn more about rare genetic changes?<\/strong><\/h3>\n

I hope we are bringing awareness to KMT2E.<\/p>\n

What is one question you wish researchers could answer about this genetic change?<\/b><\/h3>\n

What does this gene mutation do?<\/p>\n

What have you learned about your or your child\u2019s genetic condition from other families?<\/b><\/h3>\n

That we have many similarities.<\/p>\n

\"\"<\/p>\n

If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/b><\/h3>\n

Embrace being unique.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Discover the inspiring story of the Fields.<\/p>\n","protected":false},"author":28,"featured_media":58202,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[16],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/58200"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/28"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=58200"}],"version-history":[{"count":3,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/58200\/revisions"}],"predecessor-version":[{"id":58211,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/58200\/revisions\/58211"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media\/58202"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=58200"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/categories?post=58200"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/tags?post=58200"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}