” Love yourself for who you are.”<\/em><\/p>\n Prefers to be on his own doesn’t really interact with his brothers and sisters.<\/p>\n Trips to seaside, swimming, feeding the ducks, visiting the zoo, visiting the deep (it’s like a very big building with lots of different huge fish tanks).<\/p>\n Our son not being able to live a normal life by himself, fall in love and have a family of his own breaks my heart.<\/p>\n You can wake up in the worst mood ever but Ross always puts a smile on our face.<\/p>\n I would like to learn more about CHD2 we always knew it wasn’t just autism he had.<\/p>\n This is all new to us I’m hoping we could all learn more from each other.<\/p>\n Nothing yet, Ross only got diagnosed with CHD2 today by doing 1001 genetics.<\/p>\n Live life to the fullest. Enjoy life. Love yourself for who you are.<\/p>\n How did this happen are we to blame in any way?<\/p>\n Ross is a very happy young man but does like his company doesn’t really like interacting with others. For some reason he likes to RIP his t-shirts constantly and chew on zips and buttons and tends to hit himself on his head frequently.<\/p>\n","protected":false},"excerpt":{"rendered":" By: Russel, Parent of Ross, an 18 year old with a CHD2 genetic change ” Love yourself for who you are.” What is your child\u2019s relationship like with his\/her siblings? Prefers to be on his own doesn’t really interact with his brothers and sisters. What does your family do for fun? Trips to seaside, swimming, […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":423,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5357"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5357"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5357\/revisions"}],"predecessor-version":[{"id":5359,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5357\/revisions\/5359"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/423"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5357"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n