“There is hope! Our son has done very well with years of therapy, acceptance and love. Yours can too!”<\/em><\/p>\n Very good overall. He loves and relies on the help and guidance of his sister.<\/p>\n Go to NYC, hike, go to Ocean City, NJ.<\/p>\n Financial, mom stopped working and now lives far from NYC where her jobs were. No consistent help for\/with kids.<\/p>\n The way he sees the world and how sweet he is and his interest in others.<\/p>\n I believe genes and science are the key to so much and want to be part of it.<\/p>\n We have had Danny nearly 13 years. He was diagnosed at 2 with autism. This new diagnosis of HIVEP2 will help us in understanding his development and others like him.<\/p>\n So far, that many of his challenges (motor skills, speech, ADHD) are common.<\/p>\n There is hope! Our son has done very well with years of therapy, acceptance and love. Yours can too!<\/p>\n What medications can help and is there any way to improve cognitive function\/motor skills beyond therapy?<\/p>\n We look forward to continuing this journey with others in our corner!<\/p>\n","protected":false},"excerpt":{"rendered":" By: Joann, Parent of Daniel, a 13 year old with a HIVEP2 genetic change “There is hope! Our son has done very well with years of therapy, acceptance and love. Yours can too!” What is your child\u2019s relationship like with his\/her siblings? Very good overall. He loves and relies on the help and guidance of […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":507,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5323"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5323"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5323\/revisions"}],"predecessor-version":[{"id":5324,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5323\/revisions\/5324"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/507"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5323"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n