“Every child is unique. Every child is different. Every child has their story.”<\/em><\/p>\n In the summer time we like to go boating and camping. She is only 1 now, so I\u2019m hoping she will start to love these things.<\/p>\n I would have to say, not knowing what to expect because she is so young. And when people start to ask why she isn\u2019t crawling yet or walking.<\/p>\n She laughs at fart noises or things dropping. She has this nervous laugh when she hears these things, it\u2019s so cute.<\/p>\n To help future families!<\/p>\n That every child is unique. Every child is different. Every child has their story.<\/p>\n It\u2019s not your fault!<\/p>\n How is it linked to autism and cancer?<\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" By: the parent of a 1 year old with a PPP2R5D genetic change “Every child is unique. Every child is different. Every child has their story.” What does your family do for fun? In the summer time we like to go boating and camping. She is only 1 now, so I\u2019m hoping she will start […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":543,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5301"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5301"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5301\/revisions"}],"predecessor-version":[{"id":5302,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5301\/revisions\/5302"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/543"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5301"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n