{"id":52934,"date":"2024-07-09T15:51:51","date_gmt":"2024-07-09T19:51:51","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/2024\/07\/09\/a-jornada-dos-ramirez-com-o-ppp2r5d\/"},"modified":"2024-07-18T11:45:56","modified_gmt":"2024-07-18T15:45:56","slug":"a-jornada-dos-ramirez-com-o-ppp2r5d","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/pt-br\/2024\/07\/09\/a-jornada-dos-ramirez-com-o-ppp2r5d\/","title":{"rendered":"A jornada dos Ramirez com o PPP2R5D"},"content":{"rendered":"<h3>Como \u00e9 sua fam\u00edlia?<\/h3>\n<p>Temos cinco membros na fam\u00edlia, dois adultos e tr\u00eas crian\u00e7as. Somos de Bucaramanga, Col\u00f4mbia. Lucia \u00e9 uma menina e a irm\u00e3 mais velha, Antonio \u00e9 o garoto PPP e Juan \u00e9 um beb\u00ea que nasceu durante a pandemia da COVID-19.<\/p>\n<h3 class=\"p1\"><b>O que voc\u00ea faz para se divertir?<\/b><\/h3>\n<p class=\"p2\">Adoramos nadar, correr e praticar diversos esportes. Tamb\u00e9m adoramos a natureza, por isso vamos acampar.<\/p>\n<h3 class=\"p1\"><b>Fale-nos sobre a maior dificuldade que voc\u00ea enfrenta.<\/b><\/h3>\n<p class=\"p2\">Compreender e acompanhar o Antonio no processo sem criar fardos para os outros dois irm\u00e3os.<\/p>\n<h3 class=\"p1\"><b><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-15116 alignleft\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-300x300.png\" alt=\"\" width=\"288\" height=\"288\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-300x300.png 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-1024x1024.png 1024w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-150x150.png 150w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-768x768.png 768w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-1536x1536.png 1536w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-2048x2048.png 2048w\" sizes=\"(max-width: 288px) 100vw, 288px\" \/><\/b><\/h3>\n<h3 class=\"p1\"><b>O que o motiva a participar de pesquisas?  <\/b><\/h3>\n<p class=\"p2\">\u00c9 importante fazer parte da busca da solu\u00e7\u00e3o e tamb\u00e9m \u00e9 nosso compromisso com as outras gera\u00e7\u00f5es.<br \/>\nSentir-se parte do grupo e fazer parte da comunidade que tem em mente os mesmos objetivos que voc\u00ea.<\/p>\n<h3 class=\"p1\"><b>Qual \u00e9 a pergunta que voc\u00ea gostaria que os pesquisadores pudessem responder sobre essa mudan\u00e7a gen\u00e9tica?<\/b><\/h3>\n<p class=\"p2\">Se conseguirmos encontrar uma cura um dia.<\/p>\n<h3 class=\"p1\"><b>O que voc\u00ea aprendeu sobre a sua condi\u00e7\u00e3o gen\u00e9tica ou a do seu filho com outras fam\u00edlias?<\/b><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-15151 size-medium alignright\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-300x300.png\" alt=\"\" width=\"300\" height=\"300\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-300x300.png 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-1024x1024.png 1024w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-150x150.png 150w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-768x768.png 768w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-1536x1536.png 1536w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-2048x2048.png 2048w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p class=\"p2\">Especificamente, algumas terapias que poderiam ajud\u00e1-lo.<\/p>\n<h3 class=\"p1\"><b>Se voc\u00ea pudesse dar um conselho a algu\u00e9m recentemente diagnosticado com a altera\u00e7\u00e3o gen\u00e9tica em sua fam\u00edlia, qual seria?<\/b><\/h3>\n<p class=\"p2\">Tenha muita f\u00e9 e paci\u00eancia.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Descubra a hist\u00f3ria inspiradora da fam\u00edlia Ramirez.<\/p>\n","protected":false},"author":28,"featured_media":52929,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[298],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts\/52934"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/users\/28"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/comments?post=52934"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts\/52934\/revisions"}],"predecessor-version":[{"id":52944,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts\/52934\/revisions\/52944"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/media\/52929"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/media?parent=52934"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/categories?post=52934"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/tags?post=52934"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}