{"id":52933,"date":"2024-07-09T15:51:51","date_gmt":"2024-07-09T19:51:51","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/2024\/07\/09\/el-viaje-de-los-ramirez-con-ppp2r5d\/"},"modified":"2024-07-18T11:45:57","modified_gmt":"2024-07-18T15:45:57","slug":"el-viaje-de-los-ramirez-con-ppp2r5d","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/es\/2024\/07\/09\/el-viaje-de-los-ramirez-con-ppp2r5d\/","title":{"rendered":"El viaje de los Ram\u00edrez con PPP2R5D"},"content":{"rendered":"<h3>\u00bfC\u00f3mo es su familia?<\/h3>\n<p>Somos cinco miembros de la familia, 2 adultos y 3 ni\u00f1os. Somos de Bucaramanga, Colombia. Luc\u00eda es una ni\u00f1a y la hermana mayor, Antonio es el ni\u00f1o PPP, y Juan es un beb\u00e9 que naci\u00f3 durante la pandemia de COVID-19.<\/p>\n<h3 class=\"p1\"><b>\u00bfQu\u00e9 hace para divertirse?<\/b><\/h3>\n<p class=\"p2\">Nos encanta nadar, correr y practicar distintos deportes. Tambi\u00e9n nos encanta la naturaleza, as\u00ed que vamos de acampada.<\/p>\n<h3 class=\"p1\"><b>H\u00e1blenos de la mayor dificultad a la que se enfrenta.<\/b><\/h3>\n<p class=\"p2\">Comprender y acompa\u00f1ar a Antonio en el proceso sin crear cargas a los otros dos hermanos.<\/p>\n<h3 class=\"p1\"><b><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-15116 alignleft\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-300x300.png\" alt=\"\" width=\"288\" height=\"288\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-300x300.png 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-1024x1024.png 1024w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-150x150.png 150w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-768x768.png 768w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-1536x1536.png 1536w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18091808\/PEOPLE_scientist-fem-laptop-2048x2048.png 2048w\" sizes=\"(max-width: 288px) 100vw, 288px\" \/><\/b><\/h3>\n<h3 class=\"p1\"><b>\u00bfQu\u00e9 le motiva a participar en la investigaci\u00f3n?  <\/b><\/h3>\n<p class=\"p2\">Es importante formar parte de la b\u00fasqueda de la soluci\u00f3n, y tambi\u00e9n es nuestro compromiso con otras generaciones.<br \/>\nSentirte parte del grupo y formar parte de la comunidad que tiene tus mismos objetivos en mente.<\/p>\n<h3 class=\"p1\"><b>\u00bfQu\u00e9 pregunta le gustar\u00eda que los investigadores pudieran responder sobre este cambio gen\u00e9tico?<\/b><\/h3>\n<p class=\"p2\">Si alg\u00fan d\u00eda encontramos una cura.<\/p>\n<h3 class=\"p1\"><b>\u00bfQu\u00e9 ha aprendido de otras familias sobre su enfermedad gen\u00e9tica o la de su hijo?<\/b><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-15151 size-medium alignright\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-300x300.png\" alt=\"\" width=\"300\" height=\"300\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-300x300.png 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-1024x1024.png 1024w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-150x150.png 150w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-768x768.png 768w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-1536x1536.png 1536w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2023\/05\/18092017\/PEOPLE_fem-child-helix-2048x2048.png 2048w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p class=\"p2\">Concretamente, algunas terapias que podr\u00edan ayudarle.<\/p>\n<h3 class=\"p1\"><b>Si pudiera dar un consejo a alguien a quien le hayan diagnosticado recientemente el cambio gen\u00e9tico en su familia, \u00bfcu\u00e1l ser\u00eda?<\/b><\/h3>\n<p class=\"p2\">Ten mucha fe y paciencia.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Descubre la inspiradora historia de los Ramirez.<\/p>\n","protected":false},"author":28,"featured_media":52930,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[96],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/posts\/52933"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/users\/28"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/comments?post=52933"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/posts\/52933\/revisions"}],"predecessor-version":[{"id":52945,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/posts\/52933\/revisions\/52945"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/media\/52930"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/media?parent=52933"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/categories?post=52933"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/es\/wp-json\/wp\/v2\/tags?post=52933"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}