![\"\"](\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/06\/06061503\/Miriam-small.png-270x300.png\")
<\/h3>\n<\/h3>\n“Don’t give up on your child. A diagnosis is only a fraction of who your child is and will be.”<\/em><\/p>\n Since she is 15 years younger, she is pampered with lots of snuggles, horse back rides and stuffed animals from her old siblings.<\/p>\n Travel and spend time with family.<\/p>\n We are currently struggling over the decision of a private school where she will be mainstreamed vs a public school special education classroom.<\/p>\n She is always smiling! My parents claim that they have never seen her sad or crying. This is basically accurate.<\/p>\n Based on my research, my daughter has a very mild case. I want to show people that this diagnosis is not a life sentence.<\/p>\n My husband and I are both very smart people and we have very intellectual conversations at the dinner table with our older 3 children. Our daughter has grown up with lots of physical therapy, occupational therapy and speech therapy since she was 3 months old. She is doing exceptionally well. I believe that genetics are only the nature side of the equation. I want to teach the benefits of “nurture.”<\/p>\n She was just diagnosed last month. I haven’t met any other families coping with this condition.<\/p>\n Don’t give up on your child. A diagnosis is only a fraction of who your child is and will be.<\/p>\n How can we insert the missing pieces to make her chromosomes whole?<\/p>\n","protected":false},"excerpt":{"rendered":" By: Rachel, Parent of a 4 year old with a GRIN2B genetic change “Don’t give up on your child. A diagnosis is only a fraction of who your child is and will be.” What is your child\u2019s relationship like with his\/her siblings? Since she is 15 years younger, she is pampered with lots of snuggles, […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":502,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5223"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5223"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5223\/revisions"}],"predecessor-version":[{"id":5231,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5223\/revisions\/5231"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/502"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5223"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n