“Be still, be patient and prepare yourself for your life to change.”<\/em><\/p>\n It’s very sweet most of the time and others coppers behavior can be aggressive provoked and unprovoked.<\/p>\n Recently visited a petting zoo , however Cooper was more interested in the planes in the sky and and cars passing by.<\/p>\n Outings and the public’s perception of Cooper and finances.<\/p>\n His character and sweetness about him.<\/p>\n To learn more and educate others.<\/p>\n I try my hardest to understand your version but is much easier when presented in an elementary type layout of the gene change.<\/p>\n I have learned that our children do not represent The old saying ” no child is alike ” our children are so much alike in so many ways… and helps to know we are not alone on this journey.<\/p>\n Be still, be patient and prepare yourself for your life to change.<\/p>\n Can his misspell be corrected ?<\/p>\n Be present<\/p>\n","protected":false},"excerpt":{"rendered":" By: Misti, Parent of Cooper, a child with a PACS1 genetic change “Be still, be patient and prepare yourself for your life to change.” What is your child\u2019s relationship like with his\/her siblings? It’s very sweet most of the time and others coppers behavior can be aggressive provoked and unprovoked. What does your family do […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":534,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5189"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5189"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5189\/revisions"}],"predecessor-version":[{"id":5190,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5189\/revisions\/5190"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/534"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5189"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n