“One day at a time, some days and weeks there will be little progress and then they will amaze you. You won’t take little milestones for granted.”<\/em><\/p>\n He loves them, they play and fight like typical siblings<\/p>\n Swim, vacation, garden, play outside, go to anything that involves Lincolns love of cars and vehicles.<\/p>\n Communication and food issues. We have made progress with both through speech and feeding therapy.<\/p>\n He has a big personality and is loving and friendly.<\/p>\n Helping other kids in the future with similar genetic situations.<\/p>\n Good, hope we can be of future help.<\/p>\n A lot of similarities, the spectrum can be extremes, things to possibly look for in future.<\/p>\n One day at a time, some days and weeks there will be little progress and then they will amaze you. You won’t take little milestones for granted.<\/p>\n","protected":false},"excerpt":{"rendered":" By: Erica, Parent of Lincoln, a 6 year old with a MED13L genetic change “One day at a time, some days and weeks there will be little progress and then they will amaze you. You won’t take little milestones for granted.” What is your child\u2019s relationship like with his\/her siblings? He loves them, they play […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":532,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5168"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5168"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5168\/revisions"}],"predecessor-version":[{"id":5169,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5168\/revisions\/5169"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/532"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5168"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n