“Don’t give up and don’t feel any guilt. Allow this to strengthen your bond with your child if possible.”<\/em><\/p>\n Quite good. They are a real support to her.<\/p>\n Sports, short, simple vacations, church activities.<\/p>\n We are a blended family, so sometimes we face difficulties due to this feature of our family.<\/p>\n Playing anything Disney.<\/p>\n My child just recently got identified through genetic testing with a mutation on GRIN2A. She suffers from general intellectual delay, poor motor planning, autistic-like tendencies, poor understanding of conversation and a lack of ability to make spontaneous and original conversation.<\/p>\n Not much yet. This is all so new to us, but we have discovered that this condition presents itself in a spectrum of ways.<\/p>\n Don’t give up and don’t feel any guilt. Allow this to strengthen your bond with your child if possible.<\/p>\n Is there any hope in sight for treatment to mitigate or even reverse the impact of this mutation?<\/p>\n Would be happy to discuss experiences.<\/p>\n","protected":false},"excerpt":{"rendered":" By: Matt, Parent of a child with a GRIN2A genetic change “Don’t give up and don’t feel any guilt. Allow this to strengthen your bond with your child if possible.” What is your child\u2019s relationship like with his\/her siblings? Quite good. They are a real support to her. What does your family do for fun? […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":499,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5152"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5152"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5152\/revisions"}],"predecessor-version":[{"id":5153,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5152\/revisions\/5153"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/499"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5152"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n