“The diagnosis doesn’t change who your child is. Your child is a gift from God and just does things a little differently.”<\/em><\/p>\n She adores her little brother! He pushes her buttons on purpose, which causes conflict, but she loves to be around him.<\/p>\n Play at the park, read books, puzzles, music<\/p>\n We don’t know what her future will hold and what struggles she will face.<\/p>\n She is so funny and quirky! She is also kind and helpful. Her love and talent with music is amazing!<\/p>\n Because this is so rare, we need to be open about the condition.<\/p>\n The diagnosis doesn’t change who your child is. Your child is a gift from God and just does things a little differently.<\/p>\n How likely will it be that my child will have an intellectual disability, or physical issues in the future?<\/p>\n","protected":false},"excerpt":{"rendered":" By: the parent of Alice, a 4 year old with a 1q21.1 Deletion “The diagnosis doesn’t change who your child is. Your child is a gift from God and just does things a little differently.” What is your child\u2019s relationship like with his\/her siblings? She adores her little brother! He pushes her buttons on purpose, […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":163,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5133"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5133"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5133\/revisions"}],"predecessor-version":[{"id":5134,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5133\/revisions\/5134"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/163"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5133"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n