“Never quit on a goal you think is important . Break it down and celebrate the tiny goals they are big”<\/em><\/p>\n Loving, complicated, fun, hard work<\/p>\n The Lake, the pool, read and walks<\/p>\n The future is so unknown for our daughter with special needs<\/p>\n Her giggle, her innocence, her love<\/p>\n Helping<\/p>\n I\u2019m educating others all the time<\/p>\n Possibilities are endless<\/p>\n Never quit on a goal you think is important . Break it down and celebrate the tiny goals they are big<\/p>\n Can we ever make her self sufficient<\/p>\n Cry when you need to cry; Laughs when it\u2019s funny; Advocate when you see injustice<\/p>\n","protected":false},"excerpt":{"rendered":" By: Liz, Parent of Elise, a 3 year old with a FOXP1 genetic change “Never quit on a goal you think is important . Break it down and celebrate the tiny goals they are big” What is your child\u2019s relationship like with his\/her siblings? Loving, complicated, fun, hard work What does your family do for […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":497,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5084"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5084"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5084\/revisions"}],"predecessor-version":[{"id":6167,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5084\/revisions\/6167"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/497"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5084"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n