{"id":5075,"date":"2019-05-29T13:24:10","date_gmt":"2019-05-29T17:24:10","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?page_id=5075"},"modified":"2019-10-01T08:49:26","modified_gmt":"2019-10-01T12:49:26","slug":"skylers-story","status":"publish","type":"page","link":"https:\/\/www.simonssearchlight.org\/research\/what-we-study\/foxp1-2\/skylers-story\/","title":{"rendered":"Skyler&#8217;s Story"},"content":{"rendered":"<h3><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-5078 aligncenter\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092543\/Skyler-and-horse-2.jpg-225x300.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092543\/Skyler-and-horse-2.jpg-225x300.jpg 225w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092543\/Skyler-and-horse-2.jpg.jpg 480w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/h3>\n<h3 style=\"text-align: center;\">By: Jennica, Parent of Skyler, a 12 year old with a FOXP1 genetic change<\/h3>\n<p style=\"padding-left: 30px; text-align: center;\"><em>&#8220;This doesn&#8217;t define your child!&#8221;<\/em><\/p>\n<h3>What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n<p>Skyler and Kesler are close , Skyler loves to help out with his lil brother Kesler.<\/p>\n<h3>What does your family do for fun?<\/h3>\n<p>Skyler and Kesler enjoy horse back riding , and Skyler plays goalie for a hockey team.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-5079 aligncenter\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092544\/Skyler-and-horse.jpg-300x300.jpg\" alt=\"\" width=\"300\" height=\"300\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092544\/Skyler-and-horse.jpg-300x300.jpg 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092544\/Skyler-and-horse.jpg-150x150.jpg 150w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092544\/Skyler-and-horse.jpg.jpg 640w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<h3>Tell us about the biggest hardship your family faces.<\/h3>\n<p>The hardest part is juggling 2 kids with special needs. Finding the balance between working and juggling the kids appointments.<\/p>\n<h3>What about your child puts a smile on your face?<\/h3>\n<p>Their horses !! Both boys are smiling as long as they are out doors or being active.<\/p>\n<h3>What motivates you to participate in research?<\/h3>\n<p>Help others find answers so they don&#8217;t have to wait as long as we did to get a diagnosis!<\/p>\n<h3>How do you feel you are impacting our understanding of the genetic changes being studied in <span class=\"notranslate\">Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n<p>Because each child presents differently each child you see helps you build a data base to better understand the mutation<\/p>\n<h3>What have you learned about your child\u2019s condition from other families?<\/h3>\n<p>We have learned we aren&#8217;t alone !!<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-5080 aligncenter\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092546\/Skyler-hockey.jpg-225x300.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092546\/Skyler-hockey.jpg-225x300.jpg 225w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/29092546\/Skyler-hockey.jpg.jpg 480w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/p>\n<h3>If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n<p>This doesn&#8217;t define your child!!!!<\/p>\n<h3>What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n<p>Why it happened??<\/p>\n","protected":false},"excerpt":{"rendered":"<p>By: Jennica, Parent of Skyler, a 12 year old with a FOXP1 genetic change &#8220;This doesn&#8217;t define your child!&#8221; What is your child\u2019s relationship like with his\/her siblings? Skyler and Kesler are close , Skyler loves to help out with his lil brother Kesler. What does your family do for fun? Skyler and Kesler enjoy [&hellip;]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":497,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5075"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5075"}],"version-history":[{"count":3,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5075\/revisions"}],"predecessor-version":[{"id":5081,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5075\/revisions\/5081"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/497"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5075"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}