{"id":5054,"date":"2019-05-29T12:30:09","date_gmt":"2019-05-29T16:30:09","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?page_id=5054"},"modified":"2019-09-25T11:48:07","modified_gmt":"2019-09-25T15:48:07","slug":"brandon-and-selenas-story","status":"publish","type":"page","link":"https:\/\/www.simonssearchlight.org\/research\/what-we-study\/16p11-2-deletion\/brandon-and-selenas-story\/","title":{"rendered":"Brandon and Selena&#8217;s Story"},"content":{"rendered":"<h3 style=\"text-align: center;\">By: the parent of Brandon and Selena, a 7 and 3 year old with a 16p11.2 Deletion<\/h3>\n<p style=\"padding-left: 30px; text-align: center;\"><em>&#8220;It get easier, it&#8217;s a lot of work but at the end it&#8217;s a blessing.&#8221;<\/em><\/p>\n<h3>What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n<p>Don&#8217;t get along very well. Fight, yell, don&#8217;t play together<\/p>\n<h3>What does your family do for fun?<\/h3>\n<p>Parks, games sometimes, sit at home. Travel.<\/p>\n<h3>Tell us about the biggest hardship your family faces.<\/h3>\n<p>Communication with Brandon, and Selena is a runner<\/p>\n<h3>What about your child puts a smile on your face?<\/h3>\n<p>When Brandon says a new word. When Selena spins and spins. Playing with them<\/p>\n<h3>What motivates you to participate in research?<\/h3>\n<p>So I can learn more about my grand kids I&#8217;m raising<\/p>\n<h3>If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n<p>It get easier, it&#8217;s a lot of work but at the end it&#8217;s a blessing.<\/p>\n<h3>What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n<p>Why does it happen meaning what causes it.<\/p>\n<h3>Is there anything else you would like to share with other families?<\/h3>\n<p>Love them like the is no tomorrow.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>By: the parent of Brandon and Selena, a 7 and 3 year old with a 16p11.2 Deletion &#8220;It get easier, it&#8217;s a lot of work but at the end it&#8217;s a blessing.&#8221; What is your child\u2019s relationship like with his\/her siblings? Don&#8217;t get along very well. Fight, yell, don&#8217;t play together What does your family [&hellip;]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5054"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5054"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5054\/revisions"}],"predecessor-version":[{"id":6140,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5054\/revisions\/6140"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5054"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}