{"id":5046,"date":"2019-05-29T12:07:46","date_gmt":"2019-05-29T16:07:46","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?page_id=5046"},"modified":"2019-10-01T08:38:54","modified_gmt":"2019-10-01T12:38:54","slug":"michaels-story","status":"publish","type":"page","link":"https:\/\/www.simonssearchlight.org\/research\/what-we-study\/16p11-2-deletion\/michaels-story\/","title":{"rendered":"Michael&#8217;s Story"},"content":{"rendered":"<h3 style=\"text-align: center;\">By: Antoinette, Parent of Michael, a 19 month old with a 16p11.2 Deletion<\/h3>\n<p style=\"padding-left: 30px;\"><em>&#8220;Our babies our one of a kind and they are amazing little people!!! God blessed us with these little ones cherish every moment!&#8221;<\/em><\/p>\n<h3>What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n<p>He doesn&#8217;t seem very impressed with the younger sibling (3 months old) but ok with the older sibling (8)<\/p>\n<h3>What does your family do for fun?<\/h3>\n<p>Play, laugh, joke around, arts &amp; crafts, go for walks<\/p>\n<h3>Tell us about the biggest hardship your family faces.<\/h3>\n<p>The unknown of what is going to happen with our son.<\/p>\n<h3>What about your child puts a smile on your face?<\/h3>\n<p>His smile is contagious! He LOVES to dance and he loves to HUM!!! He&#8217;s so silly and he&#8217;s an amazing boy we are beyond blessed!<\/p>\n<h3>What motivates you to participate in research?<\/h3>\n<p>To help others who will go through this.<\/p>\n<h3>How do you feel you are impacting our understanding of the genetic changes being studied in <span class=\"notranslate\">Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n<p>Its a learning experience!<\/p>\n<h3>What have you learned about your child\u2019s condition from other families?<\/h3>\n<p>We are just starting with learning but so far we know we have A LOT of support.<\/p>\n<h3>If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n<p>PRAY! Love your baby extra!<\/p>\n<h3>What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n<p>Why did this happen?<\/p>\n<h3>Is there anything else you would like to share with other families?<\/h3>\n<p>Our babies our one of a kind and they are amazing little people!!! God blessed us with these little ones cherish every moment!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>By: Antoinette, Parent of Michael, a 19 month old with a 16p11.2 Deletion &#8220;Our babies our one of a kind and they are amazing little people!!! God blessed us with these little ones cherish every moment!&#8221; What is your child\u2019s relationship like with his\/her siblings? He doesn&#8217;t seem very impressed with the younger sibling (3 [&hellip;]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5046"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5046"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5046\/revisions"}],"predecessor-version":[{"id":6295,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5046\/revisions\/6295"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5046"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}