“Patience with your child. Don\u2019t compare them to your friends children or your other children. They\u2019re never going to catch up if you have the expectation that they should be like children of normal intellect.”<\/em><\/p>\n Good, pretty close family.<\/p>\n Family bbqs, movie nights<\/p>\n Her loving caring nature. She makes us all laugh without even trying.<\/p>\n Helping others and gets awareness out there.<\/p>\n With my daughter now being 27 (born 1991) and only getting diagnosed 18 months ago I hope you can help earlier detection.<\/p>\n Nothing. I had to deal with every missed milestone, speech delays, physical impairments, hospital visits, and specialist appointments from birth – 26yrs alone without a diagnosis.<\/p>\n Patience with your child. Don\u2019t compare them to your friends children or your other children. They\u2019re never going to catch up if you have the expectation that they should be like children of normal intellect.<\/p>\n Are there any links to 16p11.2 deletion and reproductive abnormalities?? My daughter also has vaginal and cervical atresia.<\/p>\n I have 5 adult children. Only 1 with 16p, I think we are given children with special needs to teach us patience. Love them and create a beautiful life for your child.<\/p>\n","protected":false},"excerpt":{"rendered":" By: Debra, Parent of Ashleigh, a 27 year old with a 16p11.2 Deletion “Patience with your child. Don\u2019t compare them to your friends children or your other children. They\u2019re never going to catch up if you have the expectation that they should be like children of normal intellect.” What is your child\u2019s relationship like with […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5043"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5043"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5043\/revisions"}],"predecessor-version":[{"id":5045,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5043\/revisions\/5045"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5043"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n