“Love your kid unconditionally and keep in mind each child is unique so all may not apply to your child.”<\/em><\/p>\n Typical boys alot of play and bickering<\/p>\n Try to do family outings or getaways<\/p>\n Trying to understand what’s ahead for my son’s future since these genetic testing results came 2 months ago<\/p>\n Resilience from birth to now, his strength both physically and mentally, he’s just special<\/p>\n I have a lot of questions that have no answers and it’s an awful feeling. Also if my son’s test or journey can be of some help to anyone out there then why not?<\/p>\n Not much yet just started researching and learning about this recently<\/p>\n Love your kid unconditionally and keep in mind each child is unique so all may not apply to your child.<\/p>\n Serious risks that lie ahead for my son<\/p>\n Be strong and hang in there….I’ve been fighting since his birth at 28 weeks of life and as long as he’s willing push forward I will be there to help him in anyway I can.<\/p>\n","protected":false},"excerpt":{"rendered":" By: the parent of Tristan, a 4 year old with a 16p11.2 Deletion “Love your kid unconditionally and keep in mind each child is unique so all may not apply to your child.” What is your child\u2019s relationship like with his\/her siblings? Typical boys alot of play and bickering What does your family do for […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5026"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=5026"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5026\/revisions"}],"predecessor-version":[{"id":5027,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/5026\/revisions\/5027"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=5026"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n