“Our families share something special so let’s make our lives special for all of us”<\/em><\/p>\n It is a wonderful relationship, they interact lovely!<\/p>\n We play games together, go to playgrounds, spend a lot of time with grandparents, uncles, and the rest of the family<\/p>\n As we don’t know what to expect in the future, we take every day the way it comes!<\/p>\n The first thing in the morning when I go to his room and he is still sleepy but smiles at me right away<\/p>\n 1.) To find out the most up-to-date information to support our child as much as possible 2.) To help other people with our input 3.) To connect with other families in a similar situation<\/p>\n I hope that I\/we can contribute as much as possible<\/p>\n At the moment, I haven’t learned too much as I haven’t had contact with too many families yet.<\/p>\n Your life has just taken a new route and you should be excited to find out where it will lead you!<\/p>\n Will our child be able to speak “normally”?<\/p>\n Our families share something special so let’s make our lives special for all of us<\/p>\n","protected":false},"excerpt":{"rendered":" By: Gregory, Parent of a 20 month old with a 16p11.2 Deletion “Our families share something special so let’s make our lives special for all of us” What is your child\u2019s relationship like with his\/her siblings? It is a wonderful relationship, they interact lovely! What does your family do for fun? We play games together, […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4994"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4994"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4994\/revisions"}],"predecessor-version":[{"id":4995,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4994\/revisions\/4995"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4994"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n