“Keep doing what you are doing to help whatever difficulties\/deficits your child faces. The diagnosis doesn’t change the treatment plan if you are treating what is already an issue.”<\/em><\/p>\n Good, he definitely isn’t as close with them as they are with each other, but he has some great moments with them too.<\/p>\n We like the shore, spending time with family and friends, going to the zoo, aquarium, and places with animals. We like to be outside<\/p>\n Wishing our son had at least one real friend. He doesn’t mind, but we would like him to know true friendship<\/p>\n His smiling face and his innocence. Such a happy and sweet boy<\/p>\n To learn more about how we can help Justin<\/p>\n Keep doing what you are doing to help whatever difficulties\/deficits your child faces. The diagnosis doesn’t change the treatment plan if you are treating what is already an issue.<\/p>\n Will they ever be able to add the missing chromosome back into Justin? That would be so cool<\/p>\n","protected":false},"excerpt":{"rendered":" By: Heather, Parent of Justin, an 8 year old with a 16p11.2 Deletion “Keep doing what you are doing to help whatever difficulties\/deficits your child faces. The diagnosis doesn’t change the treatment plan if you are treating what is already an issue.” What is your child\u2019s relationship like with his\/her siblings? Good, he definitely isn’t […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4988"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4988"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4988\/revisions"}],"predecessor-version":[{"id":4989,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4988\/revisions\/4989"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4988"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n