“The grass does not grow faster if you pull it. Keep cool with your child, they will reach all milestones in her own time”<\/em><\/p>\n Good<\/p>\n play something together, bowling, billards, trips<\/p>\n Unclear medical findings<\/p>\n When she is driven to her boyfriend, eating chips, telephone with her boyfriend<\/p>\n That disability is better investigated<\/p>\n I hope it helps<\/p>\n For the moment other families learn from us, because my child is older than the others, but I see a lot of similarity<\/p>\n Congratulations. You now have an answer to your question as to why the child is as they are<\/p>\n Why the gastroeosophagial reflux is so difficult to treat, after two surgeries we has now after 4 y problems once again<\/p>\n The grass does not grow faster if you pull it. Keep cool with your child, they will reach all milestones in her own time<\/p>\n","protected":false},"excerpt":{"rendered":" By: Antje, Parent of “R”, a 16 year old with a distal 16p11.2 Deletion “The grass does not grow faster if you pull it. Keep cool with your child, they will reach all milestones in her own time” What is your child\u2019s relationship like with his\/her siblings? Good What does your family do for fun? […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4986"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4986"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4986\/revisions"}],"predecessor-version":[{"id":6301,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4986\/revisions\/6301"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4986"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n