![\"\"](\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/23102324\/Sydnee-300x285.jpg\")
<\/h3>\n<\/h3>\n“Push your children. Don’t have low expectations actions for them. Help your child to be the strongest they can be. Set a good example and talk to them about their goals.”<\/em><\/p>\n The youngest in the family. Her older siblings adore her. They call her “The Golden Child.” \ud83d\ude42<\/p>\n Sydnee’s three older siblings are in college. But when we are together we play board games, camp, bike ride and do service projects.<\/p>\n I think it’s just wondering how advanced Sydnee will be one and whether or not she’ll be able to live on her own. So teaching her the basic skills needed to do so.<\/p>\n Her siblings, teasing, joking and she just learned how to ride a bike at 16 years of age. That really makes her smile!<\/p>\n We absolutely want to help other families. In addition, we’d like to learn about other families situations and their solutions. This was we don’t feel alone.<\/p>\n Probably 7 out of 10. But that’s our fault for not studying the research as thoroughly as we should.<\/p>\n That children with 16p11.2 microdetion progress at different rates. That food and weight is an issue with many. That they become independent.<\/p>\n Push your children. Don’t have low expectations actions for them. Help your child to be the strongest they can be. Set a good example and talk to them about their goals.<\/p>\n What percentage of the adults get married and live out of their own? Do many of them have children?<\/p>\n We love our Sydnee! Our family is complete with her. We have all agreed she’s the most perfect out of all of us!!<\/p>\n","protected":false},"excerpt":{"rendered":" By: Jennifer, Parent of Sydnee, a child with a 16p11.2 Deletion “Push your children. Don’t have low expectations actions for them. Help your child to be the strongest they can be. Set a good example and talk to them about their goals.” What is your child\u2019s relationship like with his\/her siblings? The youngest in the […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4982"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4982"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4982\/revisions"}],"predecessor-version":[{"id":4984,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4982\/revisions\/4984"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4982"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n