“Hang in there and be the support your child needs. Don’t underestimate them because they will surprise you at every turn”<\/em><\/p>\n His siblings are a lot older then he is. Brandon is 3 years old, his sister is 12 and his brother is 16, but he adores his siblings<\/p>\n We went to Disney World over Christmas, we go swimming, we do family cook-outs. We don’t limit ourselves on fun<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n Not being able to understand what Brandon is trying to tell us because he is non-verbal.<\/p>\n How hard he tries and then when he finally understands something or can do something that he couldn’t before it makes me so happy<\/p>\n The idea that someone else might have an easier time or better understanding based on what we have gone through and tried.<\/p>\n I don’t know how Brandon specifically is, I just know the more kids\/people who are studied the more we can find out about 16p11.2-12.2 microdeletion<\/p>\n a lot. I can’t even list it. It is mostly little things from behavior to teeth cavities<\/p>\n Hang in there and be the support your child needs. Don’t underestimate them because they will surprise you at every turn<\/p>\n I don’t really have any. All my questions are along the lines of, “will my son ever talk or be able to live on his own?”<\/p>\n","protected":false},"excerpt":{"rendered":" By: the Parent of Brandon, a child with a 16p11.2 Deletion “Hang in there and be the support your child needs. Don’t underestimate them because they will surprise you at every turn” What is your child\u2019s relationship like with his\/her siblings? His siblings are a lot older then he is. Brandon is 3 years old, […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":161,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4979"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4979"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4979\/revisions"}],"predecessor-version":[{"id":6141,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4979\/revisions\/6141"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/161"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4979"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n