![\"\"](\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2019\/05\/23063620\/Emma-225x300.jpg\")
<\/h3>\n<\/h3>\n“Stand up and be a voice. Advocate!”<\/em><\/p>\n Emma loves her younger sister Bella! They are the best of friends always making up games and role playing together<\/p>\n We hang out in the pool, ride bikes, go on little adventures.<\/p>\n Understanding what Emma goes through with her duplication.<\/p>\n Her personality is so caring and artistic<\/p>\n To help other get information to help them with their child.<\/p>\n By doing the questionnaires you are learning so much about how this affects each person and how different each person and their duplication is.<\/p>\n I have learned about possible stomach issues that many are facing and that my daughter is having.<\/p>\n Stand up and be a voice. Advocate!<\/p>\n What is her future like?<\/p>\n Don’t stop fighting and ask questions!<\/p>\n","protected":false},"excerpt":{"rendered":" By: Megan, Parent of Emma, a 10 year old with a 16p11.2 Duplication “Stand up and be a voice. Advocate!” What is your child\u2019s relationship like with his\/her siblings? Emma loves her younger sister Bella! They are the best of friends always making up games and role playing together What does your family do for […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":162,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4958"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4958"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4958\/revisions"}],"predecessor-version":[{"id":4960,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4958\/revisions\/4960"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/162"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4958"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n