“Take one day at a time, ensure you ask for help.”<\/em><\/p>\n They don’t get on… argue with each other.. don’t like playing with each other.<\/p>\n Not much… face hard challenges doing this…<\/p>\n Going out, on buses, in shops..<\/p>\n Having cuddles, being on own<\/p>\n Trying to find out information about the condition<\/p>\n Not sure at this stage..<\/p>\n Haven’t… trying to research to get some information<\/p>\n Take one day at a time, ensure you ask for help.<\/p>\n Is there any things that could help us deal or manage the condition.. or symptoms with the condition so we can research what we are dealing with?<\/p>\n","protected":false},"excerpt":{"rendered":" By: Kevin, Parent of 2 children with a 16p11.2 duplication “Take one day at a time, ensure you ask for help.” What is your child\u2019s relationship like with his\/her siblings? They don’t get on… argue with each other.. don’t like playing with each other. What does your family do for fun? Not much… face hard […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":162,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4953"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4953"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4953\/revisions"}],"predecessor-version":[{"id":4956,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4953\/revisions\/4956"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/162"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4953"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n