“Don\u2019t stay up all night google-ing”<\/em><\/p>\n Going to the park to run or swing on the swings<\/p>\n Not knowing much about this genetic disorder<\/p>\n His adorable, playful personality.<\/p>\n Understanding more about 16p in regard to my son. As well as possibly helping the future parent receiving this diagnosis have more information available to them.<\/p>\n Nothing yet because we just joined<\/p>\n Nothing yet because we just joined<\/p>\n I don\u2019t know the questions to ask yet because this is very new.<\/p>\n","protected":false},"excerpt":{"rendered":" By: Jane, Parent of Oz, a 2 year old with a 16p11.2 duplication “Don\u2019t stay up all night google-ing” What does your family do for fun? Going to the park to run or swing on the swings Tell us about the biggest hardship your family faces. Not knowing much about this genetic disorder What about […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":162,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4951"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4951"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4951\/revisions"}],"predecessor-version":[{"id":6299,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4951\/revisions\/6299"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/162"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4951"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n