“Be involved in the Facebook groups so you don\u2019t feel alone”<\/em><\/p>\n Harper gets along great with her sisters and brother. Lots of hugs and kisses for them and they can play for hours together!<\/p>\n Family movie nights, play outside, swim, go for walks<\/p>\n Communication, Harper is frustrated when she doesn\u2019t get what she wants and can\u2019t telk us. Her attachment to dad is a challenge as well. Epilepsy<\/p>\n Her siblings, music, little blue truck books!<\/p>\n A cure<\/p>\n Be involved in the Facebook groups so you don\u2019t feel alone<\/p>\n How severe will she be when she gets older? Will there be a treatment or cure?<\/p>\n","protected":false},"excerpt":{"rendered":" By: the parent of Harper, a 2 year old with a SYNGAP1 genetic change “Be involved in the Facebook groups so you don\u2019t feel alone” What is your child\u2019s relationship like with his\/her siblings? Harper gets along great with her sisters and brother. Lots of hugs and kisses for them and they can play for […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":588,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4846"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4846"}],"version-history":[{"count":3,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4846\/revisions"}],"predecessor-version":[{"id":6274,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4846\/revisions\/6274"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/588"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4846"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n