“Accept it, but don’t reconcile with it. Your child will learn at a slow pace, but will make progress all the time.”<\/em><\/p>\n She is ignoring him. But he is only 4 months old.<\/p>\n Swimming, walking, listening to music, going to concerts, going to the playground, going on trips..<\/p>\n Misunderstanding due to speech impairment, every task requires a lot of energy.<\/p>\n Her laugh, perkiness, playfulness<\/p>\n Hope that it will help understand SYNGAP1 and help the research of it<\/p>\n That all face problems with fine motor skills and speech. All children bite and have some sort of social disorder or sensory integration problems.<\/p>\n Accept it, but don’t reconcile with it. Your child will learn at a slow pace, but will make progress all the time.<\/p>\n How can we realize our child’s true potential?<\/p>\n","protected":false},"excerpt":{"rendered":" By: the parent of a child with a SYNGAP1 genetic change “Accept it, but don’t reconcile with it. Your child will learn at a slow pace, but will make progress all the time.” What is your child\u2019s relationship like with his\/her siblings? She is ignoring him. But he is only 4 months old. What does […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":588,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4843"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4843"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4843\/revisions"}],"predecessor-version":[{"id":4844,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4843\/revisions\/4844"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/588"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4843"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n