“Ask and ask questions until you feel comfortable with all you have done.”<\/em><\/p>\n Very good.<\/p>\n Swim, movies, parks, bowling, bike riding, playing with our farm animals, playing Nintendo switch, picnics, games<\/p>\n All the different special needs and the blended family. And the behaviors of each individual child.<\/p>\n How sweet she is. And how she goes with the flow. And when she masters a new skill.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n Finding more information on my kids.<\/p>\n I found out that most kids with SYNGAP1 have epilepsy. And I pushed to have our daughter tested. And she has absent seizures<\/p>\n Ask and ask questions until you feel comfortable with all you have done.<\/p>\n Can she learn to talk?<\/p>\n","protected":false},"excerpt":{"rendered":" By: Melanie, Parent of Aliana, a 4 year old with a SYNGAP1 genetic change “Ask and ask questions until you feel comfortable with all you have done.” What is your child\u2019s relationship like with his\/her siblings? Very good. What does your family do for fun? Swim, movies, parks, bowling, bike riding, playing with our farm […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":588,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4840"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4840"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4840\/revisions"}],"predecessor-version":[{"id":4842,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4840\/revisions\/4842"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/588"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4840"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
Tell us about the biggest hardship your family faces.<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n