{"id":45284,"date":"2024-02-08T12:41:41","date_gmt":"2024-02-08T17:41:41","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/2024\/02\/08\/mes-de-conscientizacao-sobre-doencas-raras-serie-de-webinars\/"},"modified":"2024-03-21T15:20:38","modified_gmt":"2024-03-21T19:20:38","slug":"mes-de-conscientizacao-sobre-doencas-raras-serie-de-webinars","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/pt-br\/2024\/02\/08\/mes-de-conscientizacao-sobre-doencas-raras-serie-de-webinars\/","title":{"rendered":"M\u00eas de Conscientiza\u00e7\u00e3o sobre Doen\u00e7as Raras: S\u00e9rie de webinars"},"content":{"rendered":"<h4><strong>S\u00e9rie de webinars do M\u00eas de Conscientiza\u00e7\u00e3o sobre Doen\u00e7as Raras do <span class=\"notranslate\">Simons Searchlight<\/span><\/strong><\/h4>\n<p><span style=\"font-weight: 400;\">Em comemora\u00e7\u00e3o ao M\u00eas de Conscientiza\u00e7\u00e3o sobre Doen\u00e7as Raras, em fevereiro, a <span class=\"notranslate\">Simons Searchlight<\/span> est\u00e1 organizando uma s\u00e9rie de webinars envolventes, oferecendo insights valiosos e perspectivas de especialistas. Marque em sua agenda e inscreva-se para essas sess\u00f5es esclarecedoras. *Todos os webinars ser\u00e3o gravados e disponibilizados em nosso <a href=\"https:\/\/www.youtube.com\/@SimonsSearchlight\/featured\" target=\"_blank\" rel=\"noopener\">canal do YouTube<\/a> (tamb\u00e9m publicaremos em nosso site).<\/span><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-large wp-image-40691\" src=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2024\/01\/09090239\/Rare-Disease-Awareness-Month-Webinar-Series-16x9-6-1024x576.png\" alt=\"\" width=\"1024\" height=\"576\" srcset=\"https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2024\/01\/09090239\/Rare-Disease-Awareness-Month-Webinar-Series-16x9-6-1024x576.png 1024w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2024\/01\/09090239\/Rare-Disease-Awareness-Month-Webinar-Series-16x9-6-300x169.png 300w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2024\/01\/09090239\/Rare-Disease-Awareness-Month-Webinar-Series-16x9-6-768x432.png 768w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2024\/01\/09090239\/Rare-Disease-Awareness-Month-Webinar-Series-16x9-6-1536x864.png 1536w, https:\/\/cdn.simonssearchlight.org\/wp-content\/uploads\/2024\/01\/09090239\/Rare-Disease-Awareness-Month-Webinar-Series-16x9-6.png 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/p>\n<h4><strong>Quarta-feira, 14 de fevereiro<\/strong><strong> 14, \u00e0s 12h (hor\u00e1rio de Bras\u00edlia) <a href=\"https:\/\/bostonchildrens.zoom.us\/webinar\/register\/9617043976897\/WN_yCOTM1teQ_CGylnd_iXWPA\" target=\"_blank\" rel=\"noopener\"><b>Registre-se aqui<\/b><\/a><\/strong><\/h4>\n<p><strong>Perguntas e respostas com os conselheiros gen\u00e9ticos da <span class=\"notranslate\">Simons Searchlight<\/span>: Navegando por novos diagn\u00f3sticos, testes gen\u00e9ticos e recursos<\/strong><\/p>\n<p>Prepare-se para um mergulho profundo na compreens\u00e3o das fun\u00e7\u00f5es dos conselheiros gen\u00e9ticos, dos testes gen\u00e9ticos e da variedade de recursos que a <span class=\"notranslate\">Simons Searchlight<\/span> oferece \u00e0s fam\u00edlias. Traga suas perguntas, e nossos especialistas ter\u00e3o as respostas!<\/p>\n<p><span style=\"text-decoration: underline;\">Palestrantes e biografias<\/span>: <a href=\"https:\/\/www.simonssearchlight.org\/pt-br\/sobre\/equipe-do-simons-searchlight\/\" target=\"_blank\" rel=\"noopener\">Misia Kowanda, PhD, MSc, CGC, Claire Jones, MS, CGC e Jamie Lundy, MS, LCGC, <\/a><span class=\"notranslate\">Simons Searchlight<\/span> Genetic Counselors<\/p>\n<hr>\n<h4><strong>Quarta-feira, 21 de fevereiro <\/strong><strong>21, \u00e0s 16h (hor\u00e1rio de Bras\u00edlia) <a href=\"https:\/\/bostonchildrens.zoom.us\/webinar\/register\/1117043981897\/WN_2u2v9AhjTYmfx3GYExQFdA\" target=\"_blank\" rel=\"noopener\"><b>Registre-se aqui<\/b><\/a><\/strong><\/h4>\n<p><strong>&#8220;O que \u00e9 apraxia da fala e como devemos trat\u00e1-la?&#8221;<\/strong><\/p>\n<div class=\"xdj266r x11i5rnm xat24cr x1mh8g0r x1vvkbs\">\n<p><span style=\"font-weight: 400;\">Aprofunde-se nas complexidades da apraxia da fala com um painel distinto. Obtenha informa\u00e7\u00f5es abrangentes sobre o que \u00e9 a apraxia da fala e os tratamentos eficazes para esse dist\u00farbio da fala.<\/span><\/p>\n<\/div>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Apresentadores e biografias<\/span>: <a href=\"https:\/\/www.geneticsofspeech.org.au\/about-us\/meet-our-investigators\/professor-angela-morgan\/\" target=\"_blank\" rel=\"noopener\">Angela Morgan, PhD<\/a>, Murdoch Children&#8217;s Research Institute (MCRI), <a href=\"https:\/\/www.medbridge.com\/instructors\/ruth-stoeckel-apraxia-of-speech-reading\/?mbt_adcid=ga-20250817580&amp;utm_term=&amp;utm_campaign=ind_bofu_dynamic_instructor-pages&amp;utm_source=googlead&amp;utm_medium=cpc&amp;hsa_acc=7977319469&amp;hsa_cam=20250817580&amp;hsa_grp=150813741358&amp;hsa_ad=661071568764&amp;hsa_src=g&amp;hsa_tgt=dsa-2087198773579&amp;hsa_kw=&amp;hsa_mt=&amp;hsa_net=adwords&amp;hsa_ver=3&amp;gad_source=1&amp;gclid=CjwKCAiA1-6sBhAoEiwArqlGPvhDu7gS6fotHSL6M1R0mpKLw8IdUD3PyrGLQx0b21owdfl8XygNJhoC2dEQAvD_BwE\" target=\"_blank\" rel=\"noopener\">Ruth Stoeckel, PhD, CCC-SLP<\/a>, Em\u00e9rita da Mayo Clinic e <a href=\"https:\/\/www.sfari.org\/people\/paul-wang\/\" target=\"_blank\" rel=\"noopener\">Paul Wang, MD, <\/a><\/span><span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI)<\/p>\n<hr>\n<h4><strong>Quarta-feira, 28 de fevereiro <\/strong><strong>28 de fevereiro, \u00e0s 12h (hor\u00e1rio de Bras\u00edlia) <a href=\"https:\/\/bostonchildrens.zoom.us\/webinar\/register\/9617043987580\/WN_t_sK0F1lRLGMvNjkrxmB7A\" target=\"_blank\" rel=\"noopener\"><b>Registre-se aqui<\/b><\/a><\/strong><\/h4>\n<p><strong>&#8220;O impacto da participa\u00e7\u00e3o e dos dados na pesquisa gen\u00e9tica: Insights dos pesquisadores do <span class=\"notranslate\">Simons Searchlight<\/span> e do SFARI&#8221;<br \/>\n<\/strong><\/p>\n<p>Junte-se a n\u00f3s em um painel de discuss\u00e3o instigante com cientistas da <span class=\"notranslate\">Simons Searchlight<\/span> e da <span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI). Explore o profundo impacto dos dados dos participantes no avan\u00e7o da pesquisa gen\u00e9tica e inspire-se em exemplos reais de pesquisadores que transformam seus dados e bioesp\u00e9cimes em projetos inovadores, mostrando os resultados diretos de sua inestim\u00e1vel contribui\u00e7\u00e3o para a pesquisa. Haver\u00e1 tempo para perguntas no final do webinar.<\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Painelistas e biografias<\/span>: Lauren Bauer, <span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI), <a href=\"https:\/\/www.simonssearchlight.org\/pt-br\/sobre\/equipe-do-simons-searchlight\/\" target=\"_blank\" rel=\"noopener\">Katina Calakos, PhD<\/a>, Boston Children&#8217;s Hospital, <a href=\"https:\/\/www.sfari.org\/people\/thomas-frazier\/\" target=\"_blank\" rel=\"noopener\">Tom Frazier, PhD<\/a>, John Carroll University, <a href=\"https:\/\/www.researchgate.net\/profile\/Heike-Rebholz\" target=\"_blank\" rel=\"noopener\">Heike Rebholz, PhD<\/a>, Institute de Psychiatrie et Neurosciences de Paris e <a href=\"https:\/\/www.sfari.org\/people\/julia-sommer\/\" target=\"_blank\" rel=\"noopener\">Julia Sommer, PhD,<\/a> <span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI)<\/span><\/p>\n<hr>\n<h4><strong>Quarta-feira, 6 de mar\u00e7o, \u00e0s 12h EST | <a href=\"https:\/\/bostonchildrens.zoom.us\/webinar\/register\/WN_MYX2T1cmQIak2zla6vHLrA\" target=\"_blank\" rel=\"noopener\">Registre-se aqui<\/a><\/strong><\/h4>\n<p><strong>Perguntas e respostas com a Dra. Cora Taylor: Interven\u00e7\u00f5es comportamentais para a comunidade <span class=\"notranslate\">Simons Searchlight<\/span><\/strong><\/p>\n<p><span style=\"font-weight: 400;\">Junte-se a n\u00f3s em uma discuss\u00e3o com Cora Taylor, PhD, enquanto ela compartilha conhecimentos sobre interven\u00e7\u00f5es comportamentais adaptadas para a comunidade <span class=\"notranslate\">Simons Searchlight<\/span>. Taylor responde \u00e0s suas perguntas sobre educa\u00e7\u00e3o e interven\u00e7\u00e3o precoce, diagn\u00f3stico de autismo, sono, alimenta\u00e7\u00e3o, uso do banheiro e interven\u00e7\u00f5es comportamentais para pessoas com autismo ou outras condi\u00e7\u00f5es de neurodesenvolvimento.  <\/span>Os participantes s\u00e3o incentivados a trazer suas perguntas para a sess\u00e3o de perguntas e respostas.<\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Apresentador e biografia<\/span>: <a href=\"https:\/\/www.simonssearchlight.org\/pt-br\/sobre\/equipe-do-simons-searchlight\/\" target=\"_blank\" rel=\"noopener\">Cora Taylor<\/a>, PhD, pesquisadora principal da <span class=\"notranslate\">Simons Searchlight<\/span> e psic\u00f3loga pedi\u00e1trica da Geisinger, com a moderadora Gabrielle Burkholz, MSPH<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A Simons Searchlight est\u00e1 organizando uma s\u00e9rie de webinars para o m\u00eas da Conscientiza\u00e7\u00e3o sobre Doen\u00e7as Raras.<\/p>\n","protected":false},"author":18,"featured_media":45291,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[295],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts\/45284"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/comments?post=45284"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts\/45284\/revisions"}],"predecessor-version":[{"id":45293,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/posts\/45284\/revisions\/45293"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/media\/45291"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/media?parent=45284"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/categories?post=45284"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/pt-br\/wp-json\/wp\/v2\/tags?post=45284"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}