“Don’t spend every day looking for answers, wondering what if, trying to change things, worrying about the future, because you’ll turn around a realize\u00a0your spending way too much time overthinking and worrying and your not enjoying your child grow.”<\/em><\/p>\n Strained at times. Child is better behaved when home without siblings.<\/p>\n Fun is mostly arranged around our 16p child. Somethings are hard to enjoy so we don’t do it. Enjoy indoor play areas. Play outside at home. Parks, feed ducks.<\/p>\n His funny and quirky facial expressions.<\/p>\n To find answers.<\/p>\n I’m not sure.<\/p>\n That I won’t know what the future holds. We’re all as clueless as each other.<\/p>\n Don’t spend every day looking for answers, wondering what if, trying to change things, worrying about the future, because you’ll turn around a realize you’re spending way too much time overthinking and worrying and you’re not enjoying your child grow.<\/p>\n Will my child have autism\/ADHD\/mental problems\/language disorder etc. Maybes or increased susceptibility causes more worry.<\/p>\n Try not to worry too much. Go with the flow, change things if it helps your child. Don’t let the diagnosis stop you from enjoying life.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":" By: the parent of a child with 16p11.2 microduplication syndrome “Don’t spend every day looking for answers, wondering what if, trying to change things, worrying about the future, because you’ll turn around a realize\u00a0your spending way too much time overthinking and worrying and your not enjoying your child grow.” What is your child\u2019s relationship like […]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":162,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4393"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=4393"}],"version-history":[{"count":4,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4393\/revisions"}],"predecessor-version":[{"id":5270,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/4393\/revisions\/5270"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/162"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=4393"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}What is your child\u2019s relationship like with his\/her siblings?<\/h3>\n
What does your family do for fun?<\/h3>\n
What about your child puts a smile on your face?<\/h3>\n
What motivates you to participate in research?<\/h3>\n
How do you feel you are impacting our understanding of the genetic changes being studied in Simons Searchlight<\/span> (16p11.2, 1q21.1, or single gene changes)?<\/h3>\n
What have you learned about your child\u2019s condition from other families?<\/h3>\n
If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/h3>\n
What is one question you wish researchers could answer about your child\u2019s genetic change?<\/h3>\n
Is there anything else you would like to share with other families?<\/h3>\n