{"id":43123,"date":"2024-03-04T12:23:23","date_gmt":"2024-03-04T17:23:23","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/2024\/03\/04\/on-demand-zeldzame-ziekten-bewustzijn-maand-webinars\/"},"modified":"2024-03-08T12:37:36","modified_gmt":"2024-03-08T17:37:36","slug":"on-demand-zeldzame-ziekten-bewustzijn-maand-webinars","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/nl\/2024\/03\/04\/on-demand-zeldzame-ziekten-bewustzijn-maand-webinars\/","title":{"rendered":"On-Demand: Zeldzame Ziekten Bewustzijn Maand Webinars"},"content":{"rendered":"<p>Bekijk de <span class=\"notranslate\">Simons Searchlight<\/span> Rare Disease Awareness Month webinars wanneer het jou uitkomt. Bekijk deze inzichtelijke sessies on-demand om op de hoogte te blijven en deel ze met je vrienden, familie en gemeenschap.<\/p>\n<h3><strong>Vraag en antwoord met genetisch consulenten van <span class=\"notranslate\">Simons Searchlight<\/span>: Navigeren door nieuwe diagnoses, genetische tests en hulpbronnen<\/strong><\/h3>\n<p>Neem een duik in de rol van genetisch consulenten, genetische tests en het scala aan hulpbronnen dat <span class=\"notranslate\">Simons Searchlight<\/span> biedt voor gezinnen.<\/p>\n<p><span style=\"text-decoration: underline;\">Sprekers en biografie\u00ebn<\/span>: <a href=\"https:\/\/www.simonssearchlight.org\/nl\/over\/simons-zoeklicht-personeel\/\" target=\"_blank\" rel=\"noopener\">Misia Kowanda, PhD, MSc, CGC, Claire Jones, MS, CGC en Jamie Lundy, MS, LCGC, <\/a><span class=\"notranslate\">Simons Searchlight<\/span> Genetic Counselors.<\/p>\n<iframe loading=\"lazy\" title=\"YouTube videospeler\" src=\"https:\/\/www.youtube.com\/embed\/VvqXDor6dW0?si=l1_Ha2PhNlQFyctY\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<hr>\n<h3><strong>&#8220;Wat is spraakapraxie en hoe moeten we het behandelen?&#8221;<\/strong><\/h3>\n<div class=\"xdj266r x11i5rnm xat24cr x1mh8g0r x1vvkbs\">\n<p><span style=\"font-weight: 400;\">Verdiep u in de complexiteit van spraakapraxie met een vooraanstaand panel. Krijg uitgebreid inzicht in wat apraxie van de spraak is en effectieve behandelingen voor deze spraakstoornis.<\/span><\/p>\n<\/div>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Presentatoren en biografie\u00ebn<\/span>: <a href=\"https:\/\/www.geneticsofspeech.org.au\/about-us\/meet-our-investigators\/professor-angela-morgan\/\" target=\"_blank\" rel=\"noopener\">Angela Morgan, PhD<\/a>, Murdoch Children&#8217;s Research Institute (MCRI), <a href=\"https:\/\/www.medbridge.com\/instructors\/ruth-stoeckel-apraxia-of-speech-reading\/?mbt_adcid=ga-20250817580&amp;utm_term=&amp;utm_campaign=ind_bofu_dynamic_instructor-pages&amp;utm_source=googlead&amp;utm_medium=cpc&amp;hsa_acc=7977319469&amp;hsa_cam=20250817580&amp;hsa_grp=150813741358&amp;hsa_ad=661071568764&amp;hsa_src=g&amp;hsa_tgt=dsa-2087198773579&amp;hsa_kw=&amp;hsa_mt=&amp;hsa_net=adwords&amp;hsa_ver=3&amp;gad_source=1&amp;gclid=CjwKCAiA1-6sBhAoEiwArqlGPvhDu7gS6fotHSL6M1R0mpKLw8IdUD3PyrGLQx0b21owdfl8XygNJhoC2dEQAvD_BwE\" target=\"_blank\" rel=\"noopener\">Ruth Stoeckel, PhD, CCC-SLP<\/a>, Emeritus bij Mayo Clinic en <a href=\"https:\/\/www.sfari.org\/people\/paul-wang\/\" target=\"_blank\" rel=\"noopener\">Paul Wang, MD, <\/a><\/span><span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI).<\/p>\n<p><a href=\"https:\/\/www.simonssearchlight.org\/nl\/2024\/03\/04\/on-demand-zeldzame-ziekten-bewustzijn-maand-webinars\/\" target=\"_blank\" rel=\"noopener\">Bekijk en download hier de presentatieslides in PDF-formaat.<\/a><\/p>\n<iframe loading=\"lazy\" title=\"YouTube videospeler\" src=\"https:\/\/www.youtube.com\/embed\/V5zZL1TT0kE?si=XNUVwzc6Pe0S_2Ny\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<hr>\n<h3><strong>&#8220;De impact van participatie en gegevens in genetisch onderzoek: Inzichten van <span class=\"notranslate\">Simons Searchlight<\/span> en SFARI-onderzoekers&#8221;.<br \/>\n<\/strong><\/h3>\n<p>Ontdek de diepgaande impact van deelnemersgegevens in het bevorderen van genetisch onderzoek en laat u inspireren door praktijkvoorbeelden van onderzoekers die uw gegevens en biospecimens omzetten in baanbrekende projecten, waarbij de directe resultaten van uw onschatbare bijdrage aan onderzoek worden getoond.<\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Panelleden en biografie\u00ebn<\/span>: Lauren Bauer, <span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI), <a href=\"https:\/\/www.simonssearchlight.org\/nl\/over\/simons-zoeklicht-personeel\/\" target=\"_blank\" rel=\"noopener\">Katina Calakos, PhD<\/a>, Boston Children&#8217;s Hospital, <a href=\"https:\/\/www.sfari.org\/people\/thomas-frazier\/\" target=\"_blank\" rel=\"noopener\">Tom Frazier, PhD<\/a>, John Carroll University, <a href=\"https:\/\/www.researchgate.net\/profile\/Heike-Rebholz\" target=\"_blank\" rel=\"noopener\">Heike Rebholz, PhD<\/a>, Institute de Psychiatrie et Neurosciences de Paris en <a href=\"https:\/\/www.sfari.org\/people\/julia-sommer\/\" target=\"_blank\" rel=\"noopener\">Julia Sommer, PhD,<\/a> <span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI).<\/span><\/p>\n<iframe loading=\"lazy\" title=\"YouTube videospeler\" src=\"https:\/\/www.youtube.com\/embed\/FC_R64tqMvs?si=QfjJxZhV-dbMTx1f\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<hr>\n<h3><strong>V&amp;A met Dr. Cora Taylor: Gedragsinterventies voor de <span class=\"notranslate\">Simons Searchlight<\/span> gemeenschap<\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">Discussieer mee met Cora Taylor, PhD, terwijl ze kennis deelt over gedragsinterventies op maat voor de <span class=\"notranslate\">Simons Searchlight<\/span> gemeenschap. Taylor beantwoordt je vragen over onderwijs en vroegtijdige interventie, de diagnose van autisme, slapen, voeding, toiletgang en gedragsinterventies voor mensen met autisme of andere neurologische ontwikkelingsstoornissen.  <\/span><\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Presentator en biografie<\/span>: <a href=\"https:\/\/www.simonssearchlight.org\/nl\/over\/simons-zoeklicht-personeel\/\" target=\"_blank\" rel=\"noopener\">Cora Taylor<\/a>, PhD, hoofdonderzoeker Simons Zoeklicht en kinderpsycholoog, Geisinger, met moderator Gabrielle Burkholz, MSPH<\/span><\/p>\n<iframe loading=\"lazy\" title=\"YouTube videospeler\" src=\"https:\/\/www.youtube.com\/embed\/-PsL1Ft_pMc?si=SvyKvpBrBFmwxzZ2\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Bekijk deze inzichtelijke webinars on-demand om op de hoogte te blijven.<\/p>\n","protected":false},"author":18,"featured_media":43114,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[275],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/posts\/43123"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/comments?post=43123"}],"version-history":[{"count":12,"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/posts\/43123\/revisions"}],"predecessor-version":[{"id":43267,"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/posts\/43123\/revisions\/43267"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/media\/43114"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/media?parent=43123"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/categories?post=43123"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/nl\/wp-json\/wp\/v2\/tags?post=43123"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}