{"id":43112,"date":"2024-03-04T12:23:23","date_gmt":"2024-03-04T17:23:23","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?p=43112"},"modified":"2024-03-08T12:37:33","modified_gmt":"2024-03-08T17:37:33","slug":"on-demand-rare-disease-awareness-month-webinars","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/2024\/03\/04\/on-demand-rare-disease-awareness-month-webinars\/","title":{"rendered":"On-Demand: Rare Disease Awareness Month Webinars"},"content":{"rendered":"<p>Explore the <span class=\"notranslate\">Simons Searchlight<\/span> Rare Disease Awareness Month webinars at your convenience. Watch these insightful sessions on-demand to stay informed and share them with your friends, family and community.<\/p>\n<h3><strong>Q&amp;A with <span class=\"notranslate\">Simons Searchlight<\/span> Genetic Counselors: Navigating New Diagnoses, Genetic Testing, and Resources<\/strong><\/h3>\n<p>Get a deep dive into the roles of genetic counselors, genetic testing, and the array of resources <span class=\"notranslate\">Simons Searchlight<\/span> provides for families.<\/p>\n<p><span style=\"text-decoration: underline;\">Speakers and bios<\/span>: <a href=\"https:\/\/www.simonssearchlight.org\/about\/simons-searchlight-staff\/\" target=\"_blank\" rel=\"noopener\">Misia Kowanda, PhD, MSc, CGC, Claire Jones, MS, CGC and Jamie Lundy, MS, LCGC, <\/a><span class=\"notranslate\">Simons Searchlight<\/span> Genetic Counselors.<\/p>\n<iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/VvqXDor6dW0?si=l1_Ha2PhNlQFyctY\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<hr \/>\n<h3><strong>&#8220;What is Apraxia of Speech and How Should We Treat It?&#8221;<\/strong><\/h3>\n<div class=\"xdj266r x11i5rnm xat24cr x1mh8g0r x1vvkbs\">\n<p><span style=\"font-weight: 400;\">Delve into the complexities of apraxia of speech with a distinguished panel. Gain comprehensive insights into what apraxia of speech is and effective treatments for this speech disorder.<\/span><\/p>\n<\/div>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Presenters and bios<\/span>: <a href=\"https:\/\/www.geneticsofspeech.org.au\/about-us\/meet-our-investigators\/professor-angela-morgan\/\" target=\"_blank\" rel=\"noopener\">Angela Morgan, PhD<\/a>, Murdoch Children\u2019s Research Institute (MCRI), <a href=\"https:\/\/www.medbridge.com\/instructors\/ruth-stoeckel-apraxia-of-speech-reading\/?mbt_adcid=ga-20250817580&amp;utm_term=&amp;utm_campaign=ind_bofu_dynamic_instructor-pages&amp;utm_source=googlead&amp;utm_medium=cpc&amp;hsa_acc=7977319469&amp;hsa_cam=20250817580&amp;hsa_grp=150813741358&amp;hsa_ad=661071568764&amp;hsa_src=g&amp;hsa_tgt=dsa-2087198773579&amp;hsa_kw=&amp;hsa_mt=&amp;hsa_net=adwords&amp;hsa_ver=3&amp;gad_source=1&amp;gclid=CjwKCAiA1-6sBhAoEiwArqlGPvhDu7gS6fotHSL6M1R0mpKLw8IdUD3PyrGLQx0b21owdfl8XygNJhoC2dEQAvD_BwE\" target=\"_blank\" rel=\"noopener\">Ruth Stoeckel, PhD, CCC-SLP<\/a>, Emeritus at Mayo Clinic and <a href=\"https:\/\/www.sfari.org\/people\/paul-wang\/\" target=\"_blank\" rel=\"noopener\">Paul Wang, MD, <\/a><\/span><span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI).<\/p>\n<p><a href=\"https:\/\/www.simonssearchlight.org\/2024\/03\/04\/on-demand-rare-disease-awareness-month-webinars\/\" target=\"_blank\" rel=\"noopener\">View and download the PDF presentation slides here.<\/a><\/p>\n<iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/V5zZL1TT0kE?si=XNUVwzc6Pe0S_2Ny\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<hr \/>\n<h3><strong>&#8220;The Impact of Participation and Data in Genetic Research: Insights from <span class=\"notranslate\">Simons Searchlight<\/span> and SFARI Researchers&#8221;<br \/>\n<\/strong><\/h3>\n<p>Explore the profound impact of participant data in advancing genetic research and be inspired by real-world examples of researchers transforming your data and biospecimens into groundbreaking projects, showcasing the direct outcomes of your invaluable contribution to research.<\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Panelists and bios<\/span>: Lauren Bauer, <span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI), <a href=\"https:\/\/www.simonssearchlight.org\/about\/simons-searchlight-staff\/\" target=\"_blank\" rel=\"noopener\">Katina Calakos, PhD<\/a>, Boston Children&#8217;s Hospital, <a href=\"https:\/\/www.sfari.org\/people\/thomas-frazier\/\" target=\"_blank\" rel=\"noopener\">Tom Frazier, PhD<\/a>, \u00a0John Carroll University, <a href=\"https:\/\/www.researchgate.net\/profile\/Heike-Rebholz\" target=\"_blank\" rel=\"noopener\">Heike Rebholz, PhD<\/a>, Institute de Psychiatrie et Neurosciences de Paris and <a href=\"https:\/\/www.sfari.org\/people\/julia-sommer\/\" target=\"_blank\" rel=\"noopener\">Julia Sommer, PhD,<\/a> <span class=\"notranslate\">Simons Foundation<\/span> Autism Research Initiative (SFARI).<\/span><\/p>\n<iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/FC_R64tqMvs?si=QfjJxZhV-dbMTx1f\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<hr \/>\n<h3><strong>Q&amp;A with Dr. Cora Taylor: Behavioral Interventions for the <span class=\"notranslate\">Simons Searchlight<\/span> Community<\/strong><\/h3>\n<p><span style=\"font-weight: 400;\">Join us for a discussion with Cora Taylor, PhD, as she shares knowledge into behavioral interventions tailored for the <span class=\"notranslate\">Simons Searchlight<\/span> community. Taylor answers your questions about education and early intervention, diagnosing autism, sleep, feeding, toileting, and behavioral interventions for people with autism or other neurodevelopmental conditions.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">Presenter and bio<\/span>: <a href=\"https:\/\/www.simonssearchlight.org\/about\/simons-searchlight-staff\/\" target=\"_blank\" rel=\"noopener\">Cora Taylor<\/a>, PhD, <span class=\"notranslate\">Simons Searchlight<\/span> Principal Investigator, and Pediatric Psychologist, Geisinger, with moderator Gabrielle Burkholz, MSPH<\/span><\/p>\n<iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/-PsL1Ft_pMc?si=SvyKvpBrBFmwxzZ2\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Watch these insightful webinars on-demand to stay informed.<\/p>\n","protected":false},"author":18,"featured_media":43113,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[11],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/43112"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=43112"}],"version-history":[{"count":18,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/43112\/revisions"}],"predecessor-version":[{"id":43266,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/43112\/revisions\/43266"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media\/43113"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=43112"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/categories?post=43112"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/tags?post=43112"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}