{"id":39773,"date":"2022-10-25T15:01:56","date_gmt":"2022-10-25T19:01:56","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/2022\/10\/25\/lhistoire-de-la-famille-rangers-extrait-de-spark\/"},"modified":"2024-01-29T10:01:36","modified_gmt":"2024-01-29T15:01:36","slug":"lhistoire-de-la-famille-rangers-extrait-de-spark","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/fr\/2022\/10\/25\/lhistoire-de-la-famille-rangers-extrait-de-spark\/","title":{"rendered":"L&#8217;histoire de la famille Rangers (extrait de SPARK)"},"content":{"rendered":"<p><strong>&#8220;La moiti\u00e9 de mon enfance a disparu : Grandir avec l&#8217;autisme et l&#8217;\u00e9pilepsie  <\/strong><\/p>\n<p>Abigail Ranger ne se souvient pas de tout ce qui a trait \u00e0 son enfance. Mais elle sait que l&#8217;\u00e9pilepsie y a jou\u00e9 un r\u00f4le consid\u00e9rable.<\/p>\n<p>Ranger, qui est atteinte d&#8217;autisme et d&#8217;\u00e9pilepsie, a lutt\u00e9 contre des crises graves et difficiles \u00e0 contr\u00f4ler qui ont commenc\u00e9 lorsqu&#8217;elle \u00e9tait \u00e0 l&#8217;\u00e9cole maternelle. Apr\u00e8s une crise, elle perdait ses comp\u00e9tences et m\u00eame la m\u00e9moire des \u00e9v\u00e9nements pass\u00e9s, explique sa m\u00e8re, Denise Ranger.<\/p>\n<p>&#8220;La moiti\u00e9 de mon enfance a disparu \u00e0 cause des crises d&#8217;\u00e9pilepsie. J&#8217;ai \u00e9t\u00e9 malade tellement de fois&#8221;, dit Abigail, qui a 33 ans.<\/p>\n<p>Il y a une dizaine d&#8217;ann\u00e9es, Abigail a d\u00e9couvert la raison de son autisme et de son \u00e9pilepsie. Elle pr\u00e9sente une petite duplication du mat\u00e9riel g\u00e9n\u00e9tique sur un chromosome. En 2012, elle a rejoint <span class=\"notranslate\">Simons Searchlight<\/span>, un programme de recherche destin\u00e9 aux personnes dont les g\u00e8nes et les chromosomes pr\u00e9sentent des variations qui contribuent \u00e0 l&#8217;autisme et aux troubles du d\u00e9veloppement neurologique.<\/p>\n<p>Les Rangers participent \u00e9galement \u00e0 l&#8217;\u00e9tude sur l&#8217;autisme <a href=\"https:\/\/www.sparkforautism.org\/why\/\"><span class=\"notranslate\">SPARK<\/span><\/a>, un programme apparent\u00e9 \u00e0 <span class=\"notranslate\">Simons Searchlight<\/span>. Ils esp\u00e8rent entrer en contact avec d&#8217;autres familles comme la leur. Denise aimerait en savoir plus sur ce que l&#8217;avenir r\u00e9serve aux adultes atteints d&#8217;autisme et de maladies g\u00e9n\u00e9tiques.<\/p>\n<p>&#8220;J&#8217;aimerais en savoir plus sur ce que l&#8217;on attend du vieillissement. \u00c0 quoi faut-il se pr\u00e9parer ?&#8221; demande Denise Ranger.<\/p>\n<p><strong><a href=\"https:\/\/sparkforautism.org\/discover_article\/autism-epilepsy\/\">Lisez l&#8217;histoire compl\u00e8te de la famille Ranger sur le site web de <span class=\"notranslate\">SPARK<\/span>.<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>La famille Rangers participe \u00e0 l&#8217;\u00e9tude sur l&#8217;autisme SPARK et \u00e0 Simons Searchlight.<\/p>\n","protected":false},"author":18,"featured_media":39786,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[189],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts\/39773"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/comments?post=39773"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts\/39773\/revisions"}],"predecessor-version":[{"id":39789,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/posts\/39773\/revisions\/39789"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/media\/39786"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/media?parent=39773"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/categories?post=39773"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/fr\/wp-json\/wp\/v2\/tags?post=39773"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}