{"id":15939,"date":"2023-08-15T16:11:20","date_gmt":"2023-08-15T20:11:20","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?p=15939"},"modified":"2023-10-05T11:39:43","modified_gmt":"2023-10-05T15:39:43","slug":"new-quarterly-reports-august-2023","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/2023\/08\/15\/new-quarterly-reports-august-2023\/","title":{"rendered":"New Quarterly Reports &#8211; August 2023"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">? <\/span>Thanks to participants like YOU, we released new quarterly reports containing updated information on 38 genetic communities including 7 new groups (PPP3CA, MEF2C, DYNC1H1, ANKRD11, CHD2, CUL3 and SETD5) in <span class=\"notranslate\">Simons Searchlight<\/span>. Congratulations to those new communities \u2013 this is an amazing milestone.<\/p>\n<p>We extend our congratulations to all genetic communities. Your ongoing support and outreach efforts have been instrumental in expanding your respective communities\u2019 collection of high-quality, standardized data. We&#8217;re honored to be part of this journey with you. By sharing your experiences in surveys and phone interviews, you&#8217;re enabling discoveries that help many families.<\/p>\n<h3><strong>View your report \u27a1\ufe0f <a href=\"http:\/\/bit.ly\/Genes_We_Study\" target=\"_blank\" rel=\"noopener\">bit.ly\/Genes_We_Study<\/a><\/strong><\/h3>\n<p>For eligible groups*, the <span style=\"font-weight: 400;\">latest report also analyzes developmental growth charts based on the Vineland Adaptive Behavior Scales (Vineland-3) survey. The Vineland-3 measures each person\u2019s development in communication, self-care, social skills, and in younger children, motor skills. The data in this report shows skills at different ages and helps doctors and researchers understand how these skills change over time.\u00a0<\/span><\/p>\n<p><strong>To help families understand these charts, we created this explainer video:<\/strong><\/p>\n<iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/r24CMnS93rA?si=3_bHuU5zQUcO3YXx\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"text-decoration: underline;\">*Important to note<\/span>: Since we are showing individual data in this report, we are sharing the special spotlight with groups with 10 or more members who contributed Vineland-3 data. Please encourage your community to complete their Vineland survey today to be included in future reports.\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The latest report includes updated information on 37 genetic communities.<\/p>\n","protected":false},"author":18,"featured_media":11974,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[26],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/15939"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=15939"}],"version-history":[{"count":12,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/15939\/revisions"}],"predecessor-version":[{"id":16015,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/15939\/revisions\/16015"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media\/11974"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=15939"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/categories?post=15939"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/tags?post=15939"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}