{"id":14632,"date":"2023-01-30T10:04:25","date_gmt":"2023-01-30T15:04:25","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?p=14632"},"modified":"2023-10-05T11:39:46","modified_gmt":"2023-10-05T15:39:46","slug":"simons-searchlight-january-2023-data-release","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/2023\/01\/30\/simons-searchlight-january-2023-data-release\/","title":{"rendered":"Simons Searchlight: January 2023 Data Release"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">In January 2023, <span class=\"notranslate\">Simons Searchlight<\/span> released new data for use in research studies. Approved investigators can request the data via <\/span><a href=\"https:\/\/www.sfari.org\/resource\/sfari-base\/\"><span style=\"font-weight: 400;\">SFARI Base<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><strong>Some highlights of this data release include:<\/strong><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Updated summary data files for the Medical History Interview, Previous Diagnosis Interview, and Seizure History Survey<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">836 new Vineland-3 records<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">1,190 new QI-Disability records<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Revised lab results file including variant information and revised variant classifications<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Updated developmental milestone data, including mobility and communication<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Longitudinal seizure survey data, aligned with the Rare Epilepsy Network<\/span><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>In January 2023, Simons Searchlight released new data for use in research studies.<\/p>\n","protected":false},"author":18,"featured_media":13756,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[26],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/14632"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=14632"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/14632\/revisions"}],"predecessor-version":[{"id":14633,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/14632\/revisions\/14633"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media\/13756"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=14632"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/categories?post=14632"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/tags?post=14632"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}