{"id":13256,"date":"2022-09-09T11:20:58","date_gmt":"2022-09-09T15:20:58","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?p=13256"},"modified":"2023-10-05T11:39:48","modified_gmt":"2023-10-05T15:39:48","slug":"cameronsstory","status":"publish","type":"post","link":"https:\/\/www.simonssearchlight.org\/2022\/09\/09\/cameronsstory\/","title":{"rendered":"Cameron&#8217;s Story Living with an SLC6A1 Diagnosis"},"content":{"rendered":"<h2 style=\"padding-left: 30px; text-align: center;\"><\/h2>\n<h3 style=\"text-align: left;\"><strong>What is your family like?<\/strong><\/h3>\n<p>Cameron is 3, the youngest of our daughters. She adores her sisters Logan (9) and Mclain (7).<\/p>\n<h3><strong>What do you do for fun?<\/strong><\/h3>\n<p>Cameron loves to play outside, swim, water slides, camping, and riding her balance bike.<\/p>\n<h3><strong>Tell us about the biggest hardship you face.<\/strong><\/h3>\n<p>The biggest hardship we face is not knowing Cameron&#8217;s future while also watching her struggle to understand.<\/p>\n<h3><strong>What motivates you to participate in research?\u00a0<\/strong><\/h3>\n<p>I am motivated to participate in research to learn and help others learn about SLC6A1.<\/p>\n<div class=\"response-question-content\">\n<div class=\"response-container essay ta-response-item\">\n<h3><strong>What is one question you wish researchers could answer about this genetic change?<\/strong><\/h3>\n<p class=\"response-text openended-response-text\">How do we to ensure our kids can learn and catch up to their peers?<\/p>\n<\/div>\n<\/div>\n<h3><strong>What have you learned about your or your child&#8217;s genetic condition from other families?<\/strong><\/h3>\n<p>I have learned how much SLC6A1 mutations vary.<\/p>\n<h3><strong>If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?<\/strong><\/h3>\n<p>I would say to talk to someone- find another parent that understands and share your journey. There&#8217;s been an unexpected amount of peace from sharing our struggles and victories with others.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Learn more about Cameron&#8217;s story, a 3-year-old with SLC6A1. <\/p>\n","protected":false},"author":18,"featured_media":13259,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[16],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/13256"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/18"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=13256"}],"version-history":[{"count":5,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/13256\/revisions"}],"predecessor-version":[{"id":14426,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/posts\/13256\/revisions\/14426"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media\/13259"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=13256"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/categories?post=13256"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/tags?post=13256"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}