{"id":10993,"date":"2021-08-13T10:54:14","date_gmt":"2021-08-13T14:54:14","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?page_id=10993"},"modified":"2021-08-13T11:03:35","modified_gmt":"2021-08-13T15:03:35","slug":"wyatts-story","status":"publish","type":"page","link":"https:\/\/www.simonssearchlight.org\/research\/what-we-study\/ppp3ca\/wyatts-story\/","title":{"rendered":"Wyatt’s Story"},"content":{"rendered":"

By: Ashleah, Parent of Wyatt, a 1 year old with a PPP3CA genetic change<\/h3>\n

“Reach out, and always ask questions!”<\/em><\/p>\n

\"\"<\/p>\n

What is your family like?<\/h3>\n

A very happy caring family. We are a very very close family, and share everything.<\/p>\n

What do you do for fun?<\/h3>\n

I love to go swimming, camping, rafting, anything when the weather is nice.<\/p>\n

Tell us about the biggest hardship you face.<\/h3>\n

Not knowing all the answers when it comes to my son.<\/p>\n

What motivates you to participate in research? How has participating in research been helpful for you?<\/h3>\n

I need more answers on my son’s case.<\/p>\n

How do you feel you are helping Simons Searchlight<\/span> learn more about rare genetic changes?<\/h3>\n

My son is the only one in Idaho with the PPP3CA gene mutation.<\/p>\n

What is one question you wish researchers could answer about this genetic change?<\/h3>\n

(What are the) long term effects?<\/p>\n

What have you learned about your or your child’s genetic condition from other families?<\/h3>\n

Nothing. No one knows anything about this mutation.<\/p>\n

If you could give one piece of advice to someone recently diagnosed with this genetic change, what would it be?<\/h3>\n

Reach out, and always ask questions!<\/p>\n","protected":false},"excerpt":{"rendered":"

By: Ashleah, Parent of Wyatt, a 1 year old with a PPP3CA genetic change “Reach out, and always ask questions!” What is your family like? A very happy caring family. We are a very very close family, and share everything. What do you do for fun? I love to go swimming, camping, rafting, anything when […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":6958,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/10993"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=10993"}],"version-history":[{"count":2,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/10993\/revisions"}],"predecessor-version":[{"id":10997,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/10993\/revisions\/10997"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/6958"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=10993"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}