{"id":10893,"date":"2021-07-23T10:38:58","date_gmt":"2021-07-23T14:38:58","guid":{"rendered":"https:\/\/www.simonssearchlight.org\/?page_id=10893"},"modified":"2021-07-23T10:38:58","modified_gmt":"2021-07-23T14:38:58","slug":"camerons-story","status":"publish","type":"page","link":"https:\/\/www.simonssearchlight.org\/research\/what-we-study\/bcl11a\/camerons-story\/","title":{"rendered":"Cameron’s Story"},"content":{"rendered":"

By: Amy, Parent of Cameron, a 10 year old with a BCL11A genetic change<\/h3>\n

What is your family like?<\/h3>\n

Cameron is a special kiddo and is 10 years old. He has a 6 year old sister and baby sister on the way.<\/p>\n

What do you do for fun?<\/h3>\n

We love to watch family movies, swim, spend time with cousins.<\/p>\n

Tell us about the biggest hardship you face.<\/h3>\n

Not knowing what challenges Cameron will face in the future.<\/p>\n

What motivates you to participate in research? How has participating in research been helpful for you?<\/h3>\n

With so little information about this condition we feel it is important to use what we know and learn about Cameron to help other kids like him.<\/p>\n

How do you feel you are helping Simons Searchlight<\/span> learn more about rare genetic changes?<\/h3>\n

By sharing about Cameron’s life and experience.<\/p>\n

What is one question you wish researchers could answer about this genetic change?<\/h3>\n

Are there an degenerative aspects? Should we expect any type of regression?<\/p>\n","protected":false},"excerpt":{"rendered":"

By: Amy, Parent of Cameron, a 10 year old with a BCL11A genetic change What is your family like? Cameron is a special kiddo and is 10 years old. He has a 6 year old sister and baby sister on the way. What do you do for fun? We love to watch family movies, swim, […]<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":416,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"acf":[],"_links":{"self":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/10893"}],"collection":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/comments?post=10893"}],"version-history":[{"count":1,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/10893\/revisions"}],"predecessor-version":[{"id":10894,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/10893\/revisions\/10894"}],"up":[{"embeddable":true,"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/pages\/416"}],"wp:attachment":[{"href":"https:\/\/www.simonssearchlight.org\/wp-json\/wp\/v2\/media?parent=10893"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}